Spreading awareness by sharing Ella’s journey through Myasthenia Gravis
The Road to The Right Diagnosis
**Disclaimer** Before you read further, I would like to mention here that we love and appreciate the medical community, and this post is in no way meant to disparage doctors or the work and research they are part of every day. I am sharing her diagnosis story in detail because her condition is so rare,…
All About Autoimmune Myasthenia
Myasthenia Gravis is a rare autoimmune disorder characterized by fluctuating weakness of the voluntary muscles, and is often referred to as MG. Currently, there is no known cure for MG, but there are many treatments that can make it easier to manage life. Happy Myasthenia Gravis Awareness Month!! June is the official month of Myasthenia…
The sooner you believe it’s all in your head…
Ella has never been a “normal” kid. When she was a baby she was allergic to dairy. 2 days before her 3rd birthday she was bitten by ants and went into anaphylactic shock. A few years later she kept developing random hives all over her body and the only thing anyone could say was “idiopathic”…
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Snowflake Warrior 